Relaunching and Telling My Story

My About Me page is so old.

When I look at it, I keep thinking about how much has happened since I wrote that page. For example, I went to the University of Virginia, but there’s no comment about UVA being defending national champions in men’s basketball. Those who know me – or anyone who’s seen the T-shirts I wear – could tell you that’s a big part of my story now. They’d also know how thrilled I am that we won a national championship in lacrosse less than 2 months later. But I digress.

While my About Me page mentions my multiple sclerosis, it doesn’t include my updated information. I don’t talk about everything that changed in 2019. There’s no mention of hospitals, home health care, wheelchairs, and insurance frustrations. That’s only part of the greatest (?) hits.

My About Me page tells a story, not the story.

Why the distinction?

What’s the difference between a story and the story?

A story…

  • Could be told by anyone (even more than one person)
  • Could focus on a short period of time
  • Could be told from any number of perspectives
  • Could show what other people think of you

THE story…

  • Can only be told by you
  • Captures your life
  • Provides your perspective
  • Shows whether you’re more paying more attention to how other people see you or how you see yourself

So as I’m relaunching my blog, I’ll update my About Me page and start filling in the pieces of my story.

I’m willing to bet that others with chronic illnesses can understand the blog hiatus. 

About Amy

I’m Amy - clueless but curious. I’ve spent more than 15 years living with multiple sclerosis. I hope that sharing the mistakes I’ve made can save others the pain of making those mistakes for themselves. After decades of corporate life, I am using my research geek skills and documentation ability that was honed through a depressingly high number of hours to help reduce the cluelessness in this world by sharing chronic illness and disability information. World, please remember that chronic illness and disability do not make people invisible or irrelevant.

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